I Advocate For Patients With Rare Diseases
You are not alone. You are brilliant. You are worthy.
Welcome to My Life
Hi, I’m Lynzi. I live with Urea Cycle Disorder. I advocate for patients with rare diseases.
After spending most of my life in and out of hospitals, I’ve gained a ton of wisdom a long the way about living with a rare disease. Now I help people across the world, especially teenagers, to help them learn the skills they need to not only survive, but thrive.
Follow My Journey
Join me on Instagram as I blog my life as a rare disease patient advocate.
How I Advocate
I share my journey with others via Instagram. I take pictures and videos. Come join the community and have fun with us.
I speak at conferences across the United States of America, giving tips and strategies for living with a rare disease.
Stay tuned for comic books, articles and more. Follow my Insta to stay in the loop for all of the new happenings.
You are a strong person. Now lean into your unique purpose and live out loud.
Follow on Insta for Updates.
DM Insta @ LYNZEBRA