MY STORY

Welcome to My Life

Hi, I’m Lynzi. I live with Urea Cycle Disorder. I advocate for patients with rare diseases.

After spending most of my life in and out of hospitals, I’ve gained a ton of wisdom a long the way about living with a rare disease. Now I help people across the world, especially teenagers, to help them learn the skills they need to not only survive, but thrive.

Blogging

I share my journey with others via Instagram. I take pictures and videos. Come join the community and have fun with us.

Public Speaking

I speak at conferences across the United States of America, giving tips and strategies for living with a rare disease.

Publications

Stay tuned for comic books, articles and more. Follow my Insta to stay in the loop for all of the new happenings.